The day I wrote this was Mother’s Day 2006.
I watched my friend Karen with her two-year-old daughter walking down to the garden at the bottom end of our property.
They were walking hand in hand, little Trinda with her plastic blue shovel, ready to help mommy. It is planting day, and there is much lawn work to be done as well.
I have often had moments when I miss what could have been with my own daughter. But usually, they are on her birthday and the anniversary of her death.
Today is the first Mother's Day when I have missed her so keenly. Is that strange? To not have missed her on Mother's Day prior to this year? I guess having my sons here and healthy has always filled that void.
Today, I watched as my eldest son, who is 16, hold the hand of Karen's son Brandon, four, and walk with him to the riding mower to get started on the grass. My heart swelled with pride and love as he carefully placed Brandon in front of him on the seat so he could give him a ride. My youngest boy, 13, is in the garden, helping with planting. He, too, makes me burst with love. They are truly the lights of my life.
Yet I so miss my daughter.
She was so determined to live. She outlasted all of the doctors' predictions for life expectancy. But her sweet little heart just was not strong enough. She died in my arms, nestled against my heart.
I have rare moments of deep despair when I wonder if somehow it was my fault she was so sick. I know that is not the case. I have studied all the genetic research I could find about her condition, and I know it was just the luck of the draw.
Nothing I did could have caused or changed anything. And what it all comes down to is how blessed I was to have her in my life at all.
But I wonder what she would have looked like, had she been healthy enough to stay. She would be 10 years old now, 11 this July. Would she look like me? Would she have had blond hair or red by now? Her eyes were an amazing blue.
Perhaps that is why I love so intensely. The knowledge that we can lose those we care about so quickly makes me afraid to not love them while I can. I think that was her gift to me. Arlyann. Her name was Arlyann, after my best friend, whose own little girl is now one, and an absolute delight.
I am not sure what message I am attempting to convey this sunny, peaceful day. Perhaps it is just as simple as never be afraid to tell those you care about how you really feel, never miss an opportunity to spend time with them, always live each day to the fullest. A message perhaps directed inward as well as outward.
Never be afraid to love, or to change, or to not change.
My dearest David (Bouchard) wrote to me the other day when I told him I felt my path in life was not longer as clear as it once was, with our children getting older and my focus on working with youth taking a larger role that I originally planned it to.
He said, “My old friend, let your teacher guide you. Your heart is your compass. She is there, watching over you, telling you the right decisions.”
Best go. The sunshine calls me, the earth in my flowerpots and little garden near my deck begs to be turned and worked with my bare hands. I will sink my fingers in and feel the promise of life, the energy of the earth and all her power. I will honour the memory of my daughter by loving my sons, and the few tears I will allow will be mine to cherish alone.
16 comments:
Words can't ever say how I felt after reading your post, Stevie. I think the way you value what you had with your daughter rather than focusing on what you lost speaks volumes about the loving, giving person you are. I am so moved I can't really say more...thank you for so much for telling us. It helps me realise how much I have too with my lovely girls. I lost two unborn babies, and that was sad, but as I've said before, I cannot imagine how anyone survives losing a child they have known and loved. You have shown us how in a very special way.
Thats awful. My auntie lost a daughter to Edwards Sydrome at just 11 months.
She also astounded doctors by making it past 3 weeks, smiling and other miracles they couln't explain.
The sad irony was that she died on my aunts sons birthday :(
I cannot begin to understand how hard it must have been, I can bearly stand losing a pet let alone close family like that.
Stevie...thankyou for re-posting this..its a beautiful piece...
I didn't feel sad reading it...more so felt like i was sharing a beautiful time with you and the memory of your little girl...arlyanns and indeed your strength shines be cause of it...
'arlyann' what a lovely name ..
we can never figure out the questions..why these things happen..but in the end...its love that conquers all...the short time you had with arlyann is testament to that, as her gift of love will see you through till the rest of your days..x..
Val, I cannot imagine how hard it was for you to not have a chance to know your babies... thank you for telling me... you have a way of always making me feel stronger...
Chaz, I should not have posted this so close to your own first baby... I hope it was not insensative or me. But, I was a little surprised when you mentioned Edward's Syndrome. That is what my daughter had, but over here they just call it Trisomy 18. I hated how cold that sounded, and in doing some research, found its alternative name.
Gyspy, I am so glad you did not feel sad. You understood what I wanted to convey... I knew you would... I think all three of you did... I wanted to be able to say how blessed I was to have her in my life, for however brief a time.
xxx (one for each of you)
stevie its strange how our paths crossed because 'edwards syndrome' was so rare and only a few cases recorded in the world..i will tell my sister the story of your little girl...because you two share something unique..
A little levity to make our hearts lighter... I had to laugh when I re-read my post. The end bit that reads, "...the earth in my flowerpots and little garden near my deck begs to be turned and worked with my bare hands."
Yeah, turned out to be a not such a good idea. I love working the soil with my bare hands, but in thrusting my hand down into a barrel load I was mixing with some peat, I believe that very same day, I gashed my finger pretty badly when I hit a sharp rock (or something sharp) in the soil... my kids stood beside my as I washed it clean at the sink, trying to decide if I needed stitches. Their arms were folded on their chests, and they were looking ever so stern as they lectured me, asking "How many times have we told you to wear gardening gloves mom? See what can happen?"
I felt about 12 years old, pouting that I was being rightfully lectured by my own sons.
Talk about tables turning.
I was thinking the same thing, Gypsy!
Yes, do tell your sister. What are the odds our particular paths would cross as they have?
I admit I was a little jaw dropped when I read Chantal's post.
Oh Stevie, I smiled so widely when I read what your kids said about wearing gloves. Isn't it funny when they get to an age that they start telling you off. I know just what that feels like. My girls are both in their twenties now, and they are both taller than I am, so there are no qualms now about giving mum some 'advice'! It feels much more like being bossed around to me...lol!
it was round about the same time as well!!..small world eh?..
oh yes chantal repremands me often..lol..do i take any notice...
i think not..
unruley adult sent to bed with no supper..
Oh Steph, you have always spoken of it as a miracle and a chance to love - no matter how short that wee life was.
I believe that is what it is all about.
Love - not loss.
i gave my second child as a gift to my brother and sister-in-law through adoption - i understand the grief
he turned thirteen on 12th March...
Dale, I had no idea... that must have been very hard, but what an incredible, selfless, beautiful gift to give. Not that it is any of my buesiness, but were they unable to have their own?
Stevie, I found your post touching and agree with everyone who said it really does show much about the loving person you are. I think what unites a lot of us here in our little corner of blogland is the generosity of spirit that gets demonstrated over and over again.
I lost two unborn babies too, and have never been able to stay pregnant, although medically there's no explanation that anyone can give me. It just is. I remember feeling okay about the first loss because, as it turned out, my dad died at about the time I would have entered the seventh month, and I know it would have broken my heart to have been so close to giving him grandchild he would never meet.
I think your line of honouring Arlyann's memory by loving your sons is absolutely beautiful.
stevie the video is up!!....
Dont be sorry Stevie, life happens to us all, it's nice we can talk freely about things we've loved and lost :)
Hope you feel better soon xxx
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